Continuing Education Workshops
Every other month, we provide CF Education Workshops to Cystic Fibrosis parents, caregivers, and individuals living with CF. Our various topics all pertain to current CF research and technology, so CF families can stay in-the-know on current therapies, resources, and opportunities available.
Based in Raleigh, NC since 2016, our workshops were initially held on location of our very generous sponsor, Impact Pharma, in a conference/dinner setting. All our meetings are currently virtual and available to all CF Parents/Caregivers regardless of your location. We are currently pausing workshops, as we have moved from the Raleigh area to the Northeast, and are in transition. We will be updating the website as soon as possible. To participate in an upcoming workshop. please click here to register and we will provide ZOOM login information after you RSVP. We will add you to our mailing list and inform you when workshops are back up and running. In the meantime, check out our archive. We look forward to connecting with you! |
NACFC 2023 Research & Highlights
November 2023 Listen to the latest research from the 2023 North American Cystic Fibrosis Conference (NACFC), presented by Dr. Charles Esther of UNC Chapel Hill Children's Research Institute |
Connect with a CF Peer for Support
September 2023 CF Peer Connect is a one-to-one peer support program for people with CF and their family members ages 16 and older. No matter your age or stage in life, you can connect with someone who has been through a similar situation to share stories and learn from each other. Learn how to take the step to connect with a peer and get the support you need. |
The Importance of Mental Health When Living With a Chronic Disease
June 2023 Discuss the importance of mental health and how the entire family can be affected when you are dealing with CF. Learn how to help your children with mental health, as well as what signs to look for in yourself! |